Breastfeeding and HIV: What does guidance across Europe really say?
2025-05-06
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For women living with HIV, the decision to breastfeed comes with medical, emotional, and legal complexity. Although effective antiretroviral therapy (ART) significantly reduces the risk of HIV transmission, breastfeeding remains a debated issue, especially in countries with access to safe alternatives. A new European survey study, coordinated by WAVE under the European AIDS Clinical Society, looked at how national guidelines vary, how many women breastfeed, and what support is offered across 25 countries. The study revealed wide variations in policies—yet also a growing number of women living with HIV who choose to breastfeed.
In many parts of the world, breastfeeding is both a cultural norm and a medical recommendation. For mothers living with HIV, however, this everyday choice becomes much more complicated. While the World Health Organization (WHO) supports breastfeeding alongside ART, most national guidelines in high-income settings continue to advise against it. These conflicting messages often leave women feeling unsupported or judged, especially when they wish to make informed, personal choices.
This European survey explored national practices, trends, and laws regarding breastfeeding in women living with HIV. It gathered input from 25 countries, asking about guideline recommendations, current practices, and research activities. The aim was to understand how policies align with women’s real-life experiences—and to identify opportunities for better support.
A divided landscape with growing numbers of breastfeeding mothers
Nearly half of the surveyed countries reported an increase in breastfeeding among women living with HIV. However, recommendations were split: 52% of countries advise against breastfeeding, while 48% allow it under strict conditions, such as undetectable maternal viral load. Notably, no country currently recommends breastfeeding as a routine option for all women living with HIV. In practice, however, some healthcare providers support women who choose to breastfeed, even when national guidelines discourage it.
The study also found that maternal viral load monitoring, infant post-exposure prophylaxis, and education around breastfeeding vary widely between countries. Less than one-third of countries have dedicated staff to counsel women on this topic, and only a few provide clear patient information resources.
What this means for families and care providers
For families navigating this decision, support depends heavily on where they live and which healthcare professionals they encounter. The study underscores the need for open, respectful conversations between providers and parents, acknowledging the emotional importance of breastfeeding while also addressing medical risks. A collaborative, informed approach can empower women to make safe, supported choices.
This European-wide initiative will now help form a collaborative network focused on data sharing, research, and policy development. The goal is not only to fill knowledge gaps but to ensure that women living with HIV receive consistent, respectful care—no matter where they live.
Paper available at: Guidelines and practice of breastfeeding in women living with HIV—Results from the European INSURE survey – Keane – 2024 – HIV Medicine – Wiley Online Library
Full list of authors: Keane, A.; Lyons, F.; Aebi-Popp, K.; Feiterna-Sperling, C.; Lyall, H.; Martínez Hoffart, A.; Scherpbier, H.; Thorne, C.; Albayrak Ucak, H.; Haberl, A.
DOI: 10.1111/hiv.13583
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