Search

Supporting professional organisations

European and national professional organisations support the development of standards in the realm of the European Standards of Care for Newborn Health project.

Several members of professional organisations are active members of the project either in the role of a Topic Expert Group Chair or a Topic Expert Group member.

If you are a professional organisation in the area of perinatology or paediatrics and are interested in joining the project as a supporting organisation, please contact us.

Alliance for Childhood

2014 02 05 Logo Alliance for Childhood

The Alliance for Childhood promotes policies and practices that support children’s healthy development, love of learning, and joy in living. Our public education campaigns bring to light both the promise and the vulnerability of childhood. We act for the sake of the children themselves and for a more just, democratic, and ecologically responsible future.

BabyCare

BabyCare_Schriftzug

Of some 700 000 annual newborns in Germany, almost 60 000 are preterm. Preterm delivery is not only a major worry for families and newborns, it generates significant costs.

BabyCare is a programme to reduce preterm deliveries targeting all risk factors interventable. It was developed in 2000 by renowned obstetricians, midwives, and experts in prevention and health promotion. The success is evident; regular evaluations are demonstrating an overall reduction in preterm births by 25%.

The programme comprises a book covering all the issues arising in pregnancy, a self-administered questionnaire, individual health and nutritional recommendations based on the questionnaire responses, micronutrient optimised recipes, individual advice on medication during pregnancy and a relaxation CD with especially composed music for stress reduction.

After sending the questionnaire to the BabyCare-Team the participants get an individual analysis with tips for a healthy pregnancy and advices about the preterm birth risk.

With regard to the costs of preterm birth and the costs of the programme, the BabyCare programme is evidently highly cost-effective.

For more information about the prevention programme for pregnant woman – BabyCare – please visit the website www.baby-care.de. A description of the programme in English is available as well.

Bundesverband Bunter Kreis e.V.

Druck

The Bundesverband Bunter Kreis e.V. incorporates around 80 aftercare facilities. These establishments are distributed all over Germany to support families with seriously and chronically ill children after their hospital stays.

Preterm and high-risk births or the diagnosis of a severe and / or chronic disease often trigger feelings such as fear, guilt, anger, helplessness, and result in a fundamental overstraining. Apart from the exhausting situation, affected families are confronted with the confusing health care system, complex therapies, the reorganisation of their work and family life as well as bureaucracy.

The aftercare facilities of the Bundesverband Bunter Kreis e.V. support these families with practical support via nurses specialised in follow-up care in order to support the successful reintegration of the sick child, the siblings and the whole family in everyday life. The aftercare services are free of charge for the families. The main part of the services are paid for by health insurance companies, the basis for it being the nationwide aftercare law for services and their remuneration. The remainder is financed via grants, donations, sponsorships and subsidies.

COINN

2014 09 16 coinn web

The Council of International Neonatal Nurses (COINN) is an exciting organization that represents nurses who specialize in the care of newborn infants and their families. COINN is an important link in the growing international community of neonatal nurses and is a much needed resource for nurses that want to form a national or local organization, create guidelines for care or professional standards or just want advice on neonatal nursing issues.

Deutsche Gesellschaft für Perinatale Medizin (DGPM)

2013 DGPM Logo

DGPM, the German Society for Perinatal Medicine, is the oldest and by far biggest society for the interdisciplinary field of perinatal medicine in the German speaking region. Prof. Erich Saling, pioneer in perinatal medicine, founded the society in Berlin. That is where every two years, the DGPM Congresses take place.

Deutsche Stiftung Kranke Neugeborene

DSKN-Logo-Name-4c

The German Foundation for Sick Newborns (DEUTSCHE STIFTUNG KRANKE NEUGEBORENE) is a charitable foundation which was founded in 2014 and is currently under the patronage of the prime minister of Saxony.

The general aim of DSKN is to improve the provision of health care not only of preterm infants but also sick newborns. Despite of the medical progress regarding therapy of the vulnerable group, special needs of sick newborns often remain unsatisfied and potentials for treatment are not fully exploited.
Therefore, the DSKN promotes and supports projects to help sick newborns in Germany and improve their quality of life, with a special focus on the following 7 aims:

  • Providing an optimal start in the delivery room;
  • Improving inter-sectoral and inter-professional cooperation within a certain geographical region;
  • Optimizing care after the initial hospital treatment;
  • Improving future care of sick newborns by supporting the translation from bench to bedside;
  • Improving long-term development by strengthening parental competencies;
  • Improving quality of care by supporting clinical bench-mark initiatives;
  • Supporting the discourse on how to develop the future for the next generation.

To achieve these goals DSKN does not only financially support different projects that are close to clinical application, but does also serve as a voice of sick newborns in political discussions. The annual “Forum on the future” offers the opportunity for a discussion with political decision makers, health care providers, medical professionals, parents and others involved in the care of sick newborns.

www.dskn.org

European Association of Perinatal Medicine (EAPM)

EAPM Logo

The aim of the European Association of Perinatal Medicine is to bring together groups and individuals in a European organization to promote the science of perinatal  and maternal medicine for the benefit of mothers and their children. In this context the EAPM organizes a large European congress every two years, and together with its working groups national and international educational courses and meetings. The EAPM stimulates international research projects, develops guidelines and brings site-visits to perinatal units to accredit teaching and training in perinatology.

European Board of Gynaecology and Obstetrics (EBCOG)

EBCOG_Logo

EBCOG is the Board and College of the Obstetrics and Gynaecology Section of the Union Européenne des Medécins Spécialistes (UEMS). EBCOG began in 1996 as a fusion between the European Board of Gynaecology and Obstetrics (EBGO) and the European College of Obstetrics and Gynaecology (ECOG). EBCOG is an organisation made up of 36 countries and based in Brussels. Our objective is to improve the health of women and their babies by promoting the highest possible standards of care in all European countries. We bring together high-level professionals from the obstetrics and gynaecology field from all our member countries.

European Critical Care Foundation (ECCF)

1004 logo eccf

Over the last 20 years there has been great improvement in survival from accidents, from heart disease and from infectious disease. Babies born small survive and science offers ever greater possibilities to improve the human condition. However, as the potential to help the critically ill patient increases, so do the dilemmas in applying that potential.

Decisions made by doctors to aid the survival of critically ill patients do not only depend on the state of medical knowledge at the time, but also on a host of conditions often out of the doctor’s control.  Many important forces which determine the doctor’s decisions are not obvious and often have complex interactions. They may be financial, cultural, political, geographical, ethical, philosophical and even policies made in areas far away from medicine, for such as transport.

The European Critical Care Foundation (ECCF) is a pioneering new foundation established to initiate independent research into complex issues like these, with the objective of improving the care of patients suffering from critical illnesses across Europe.

In a ground breaking new approach, the ECCF brings together experts from the fields of medicine, law, philosophy, public policy and science to identify and address the issues that determine the survival and care of critically ill patients. ECCF focuses not on doctors and treatments, but on patients and results.

European Society for Neonatology (ESN)

Logo_ESN

ESN has developed training specifications (syllabus, competency and assessment framework) to harmonize training in Neonatology between different European countries in order to

  • establish clearly-defined standards of knowledge and skills required to practice Neonatology at a tertiary care level
  • foster the development of a European network of proficient tertiary care centers for Neonatology; and through these measures to improve the quality of care for severely ill newborn babies
  • enhance European contribution to international scientific progress in the field of Neonatology

European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN)

ESPGHAN logo

The European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) is a multi-professional organisation whose aim is to promote the health of children with special attention to the gastrointestinal tract, liver and nutritional status, through knowledge creation, the dissemination of science based information, the promotion of best practice in the delivery of care and the provision of high quality education for paediatric gastroenterology, hepatology and nutrition professionals in Europe and beyond.

European Society of Paediatric and Neonatal Intensive Care (ESPNIC)

ESPNIC Logo

The European Society of Paediatric and Neonatal Intensive Care (ESPNIC), is a non-for- profit organisation dedicated to the care of the critically ill children and newborns. Our society is comprised of Nurses and Doctors who are committed to share knowledge and improve the quality of paediatric and neonatal intensive care at the European and international level, and devoted to highly promoting multidisciplinary collaboration among paediatric, neonatal and adult intensivists as we all as nurses and meeting the needs of members, giving them a voice within the European and international context.

In this endeavour, ESPNIC is dedicated to promoting and advancing the art and science of paediatric and neonatal intensive care, and raising awareness amongst professionals in the field, European and International organisations, through a wide range of activities including annual congresses, training programmes, teaching courses, and network opportunities with the leading experts in the fields of PICU & NICU.

The Society provides the opportunity to Doctors, Nurses and other allied healthcare professionals to influence their specialty at a national and international level by facilitating a strong networking platform within a multidisciplinary environment at a national and international level.

European Society of Paediatric Research (ESPR)

untitled

The European Society for Paediatric Research (ESPR) takes seriously its role as a voice in Europe promoting paediatric research and post-graduate training. As such, it offers a high standard of ethics, a well-structured constitution, superb membership benefits (including affiliate membership of the Society for Pediatric Research), and a first-rate, annual paediatric congress.

ESPR aims to promote paediatric research in Europe and encourage collaboration between different specialised fields of paediatrics to maintain paediatrics as a unified, scientifically orientated discipline.

EuroPeriStat

logo PDF

The description will come soon.

Europe Against Infant Brain Injury (EURAIBI)

EURAIBI

EURAIBI’s aim is prevention, treatment and study of the suffering brain in the fetus and newborn, by sharing the experiences of European centers of excellence in specific areas: pathophysiology of fetal central nervous system, maternal-fetal relationship, intrauterine environment, diagnostic imaging, delivery room conundrums, developmental care, pain in the fetus and newborn. EURAIBI is particularly devoted to maternal diseases in pregnancy, intrauterine infections, asphyxia, and prenatal and postnatal treatment of infants at high risk of brain damage.

Fetal Medicine Foundation (FMF)

FMF_Logo5

The Fetal Medicine Foundation (FMF) is a Registered Charity that aims to improve the health of pregnant women and their babies through research  and training in fetal medicine. It is supported by The Fetal Medicine Centre and by private donations. The Foundation, with the support of an international group of experts, has introduced an educational program both for healthcare professionals and parents and a series of certificates of competence in different aspects of fetal medicine. Founder and Director of both the Fetal Medicine Foundation and the Fetal Medicine Center is Professor Kypros Nicolaides.

German Neonatal Network (GNN)

1004 Logo GNN

The German Neonatal Network (GNN) analyses, within a longitudinal study, which factors can influence the long-term upgrowth of prematural infants in a positive way.  The GNN is situated in the university hospital of Lübeck having a research association of 40 clinics from all over Germany so far.

Gesellschaft für Neonatologie und pädiatrische Intensivmedizin (GNPI)

Logo_GNPI_Verlauf

The German association GNPI foccusses on supporting neonatology and pediatric intensive care.

Melletted a helyem Egyesulet – Right(s) beside you Association

melletted_a_helyem_logo_10

The association was founded in 2015 by the idea of 3 neonatologists (Prof. Tibor Ertl, Dr Miklós Szabó and Dr Csaba Nádor) and a preemie mom Livia Nagy Bonnard.  The following professionals joined to found the Association :

Prof. Jozsef Bodis, Prof. Nandor Acs and Dr. Attila Ujvari – gynecologists, Dr. Ildiko Szucs – neonatologist, Prof. Zack Boukydis and Andrea Andrek – psychologists, Prof. Zsanett Csoma- dermatologist – preemie mom, Dorottya Gross – neonatal nurse, Timea Hazay – music therapist and Dr. Gabor Pazsitka – lawyer, preemie dad.

The main objective of the Association is to reduce the number of preterm births and improve the survival rate of premature babies healthy in Hungary.The Association brings together doctors, medical professionals, psychologists, obstetricians and parent representatives of premature children in order to improve the quality of care.

In order to achieve their goals, the main activities of the organisation are:

  • organising campaigns and making calls on the public, decision makers and non-governmental organisations to draw attention to the importance of the issue of preterm birth
  • providing a platform for professionals to be in dialogue with parent representatives to improve the quality of care for preterm infants by taking the professional and parental involvement into account
  • collaborating with international organisations in the field
  • organising up-to-date data services and participate in international research

Further, the organisation aims to

  • provide training for physicians and healthcare professionals performing prenatal care
  • work towards the implementation of family-centred care principles and the 24 hours presence of parents
  • provide easy to understand practical information, in form of awareness and educational materials
  • offer psychological support and counselling services for parents with preterm born children
  • support research on the prevention of preterm birth and screening tests
  • emphasise the examination of ethical and legal issues
  • gather and disseminate international best practices
  • research potential financial resources to achieve the goals

www.mellettedahelyem.com

NIDCAP Federation International (NFI)

NFI Logo with tagline-2

The NIDCAP Federation International, NFI, promotes the Newborn Individualized Developmental Care and Assessment Program (NIDCAP) in hospitals and encourages its use nationally and internationally to support the growth and development of premature infants and to improve the quality of their care and the support for their families.

Formed in 2001, the NFI is a private, non-profit, charitable organisation committed to providing the highest quality of education and training for professionals who provide care for infants in newborn intensive care nurseries and support their families.

IPOKRaTES

ipokrates_logo_2012

IPOKRaTES, an acronym for International Postgraduate Organisation for
Knowledgetransfer, Research and Teaching Excellent Students, is a
non-governmental, non-profit and charitable, registered academic
society which offers postgraduate seminars mainly in pediatrics and
neonatology, worldwide.

IPOKRaTES seminars provide high-quality education in form of small
group seminars that enables professionals to keep abreast of the most
recent developments, and offer participants the opportunity to discuss
practical problems or scientific issues personally with international
experts.

.

PEARL - Pain in Early Life

Print

Pain in Early Life – PEARL –  is a group of researchers, mainly from the Nordic countries, who are dedicated to help children to a life without pain. PEARL’s expertise lies within the fields of non-pharmacological pain management, pain assessment, and the role of parents in pain management. Our work targets three groups: parents, health care professionals and researchers, and PEARL collaborates with pain experts all over the world.

www.pearl.direct

Preterm Birth International Collaborative (PREBIC)

PREBIC_logo_20.01.2014

The Preterm Birth International Collaborative (PREBIC) Inc. is a not for profit organisation supported by the March of Dimes, USA, and the World Health Organisation, Switzerland.

PREBIC is a multinational collaborative of clinicians and research scientists who aim to improve pregnancy and birth outcomes, optimising infant health and long term development. PREBIC’s preterm birth prevention programmes include workshops for scientists, clinicians and other health care professionals, development and coordination of research expertise nodes and the organisation of annual scientific meetings at the World Health Organisation, Geneva, Switzerland.

SAFE - Attachment Formation For Educators

Logo_SAFE_Blau_rgb

The SAFE® – “Attachment Formation For Educators” project is a training program designed to enhance secure attachment between parents and their children. The prevention of attachment disorders is important, and especially the transmission of early childhood traumatic experiences across generations -and that is what this primary prevention program strives for.

SAFE® addresses all expectant parents up to the seventh month of pregnancy and is conducted in closed groups up to the end of the first year of the child.

Stiftung für das behinderte Kind

Die Stiftung für das behinderte Kind, the foundation for the disabled child, supports early diagnosis, prevention and early rehabilitation of disabled children. Implementation and development of screening and genetic counselling centres in Germany account for some of the successful work of the foundation in the past.

Union of European Neonatal and Perinatal Societies (UENPS)

Logo UENPS

The Union of European Neonatal and Perinatal Societies (UENPS) is an organisation integrating the national european societies of neonatal or perinatal medicine. It represents countries and governing bodies of each national society. So it is not a “new” society in Europe but “the” Society of the European Societies, understood as integration of all societies and not for the single members of the community. Its feeling is to concentrate in a single organization all of the European Neonatal and Perinatal Societies.